Meet Charles, Marques,
and Laithan
Charles and his sons talk about the impact of hemophilia on their family.
Hear from people living with a rare blood disorder
Hemophilia A and B
The most common form of hemophilia is hemophilia A, which is caused by a deficiency in factor VIII. Hemophilia B is caused by a deficiency in factor IX. Both factor VIII and factor IX are proteins that play an important role in forming blood clots that prevent internal bleeding or help stop bleeding after external injuries such as cuts.
Every patient's experience is unique and individual results may vary. These patients were compensated for their time creating these videos.
Meet Charles, Marques,
Meet Darlene and family
Darlene with her daughter-in-law Kristin and her grandchildren provide their perspectives on connections and being agents of change in the hemophilia community.
Meet Carrie, Dave, and Nicholas
Carrie, Dave, and Nicholas provide their perspectives on connections and change within the hemophilia community across generations.
Cold agglutinin disease
Cold agglutinin disease (CAD) is a rare, serious blood disorder. It's a form of autoimmune hemolytic anemia (AIHA), which means the immune system mistakenly attacks and destroys red blood cells. Symptoms may include fatigue, weakness, light-headedness, shortness of breath, palpitations, jaundice, and a cold-induced circulatory symptoms, bluish or reddish discoloration of the skin, blood in your urine, or dark urine.
LEARN MORE ABOUT CAD
Meet Sharon
Sharon discusses the role family plays in helping her manage her condition.
Meet Jodie
Jodie talks about the challenges and rewards of parenting two teenage boys while living with CAD.
Acquired thrombotic thrombocytopenic purpura
Acquired thrombotic thrombocytopenic purpura (aTTP) is a rare, life-threatening, autoimmune blood clotting disorder that affects about 2,000 people in the US every year.
The disease is caused by a deficiency of an enzyme called ADAMTS13. The lack of functioning ADAMTS13 enzyme results in blood platelets sticking together and forming small clots (microthrombi) throughout the body, which can lead to neurological, cardiac, renal and gastrointestinal damage, and, in some cases, death.
LEARN MORE ABOUT aTTP
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