Be your own best advocate.
Living the life you want starts with sharing your story. With making your goals and challenges known and partnering with your care team to open up new possibilities. It might feel intimidating to speak up, but sharing what’s really going on can help shape the best path forward.
Phil is a promotional speaker
compensated by Sanofi.
“It’s so easy to just say ‘fine’ when the doc asks how it’s going. But if it’s not fine, or if something’s not working, you’ve got to say something.”
Phil, living with hemophilia
How to advocate at every doctor’s appointment
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Keep notes of health concerns.
Make a list of new symptoms or issues to bring to your appointment.
Bring a list of questions.
Write down questions or anything else you want to talk about with your care team.
Answer questions openly and honestly.
Make sure your care team has the information they need by not holding anything back.
Ask for clarification.
If you don’t understand your results, treatment options, or anything else, speak up.
Consider bringing someone for support.
A friend or family member can help you feel supported, as well as ask questions or take notes for you.
Follow up as needed.
If a question or concern comes up later, call or message your care team.
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Get a personalized doctor discussion guide
Take our short Treatment and Lifestyle quiz to reflect on your current treatment. At the end, you’ll get a personalized doctor discussion guide to bring to your next appointment.
Self-advocacy tips
- Have a clear sense of what you need and what you’re asking for.
- Practice what you’re going to say in advance to build your confidence.
- Be assertive without being aggressive. Always remain calm, but keep the conversation going until your needs have been addressed.
- Ask follow-up questions as needed to make sure everyone is on the same page.
73%of people with hemophilia want to have more discussions about treatment priorities and needs with their providers.
Remember you’re not alone, and help is available.
Learn more in our global survey.
